This month Dr Abigael San, a Chartered Clinical Psychologist talked about Learning Disabilities and her experiences of working on an adult inpatient ward. At the end she answered questions about her experience of the doctorate degree at UCL. The following minutes are based on her handout.
Definition/ prevalence/ causes of Learning Disabilities (LDs):
- Sub-average general intellectual functioning + significant limitations in adaptive functioning (DSM IV, 2000)
- Mild (IQ 55-70; 85%)
- Moderate (IQ 35-55; 10%)
- Severe (IQ 20-35; 3-4%)
- Profound (IQ < 20; 1-2%)
- Onset before 18 years
- Many different etiologies - often unknown - final common pathway of various pathological processes affecting CNS function
Challenging behaviour (CB)
- "behaviour of such intensity, frequency or duration that the physical safety of the person or others is placed in serous jeopardy or behaviour which is seriously likely to limit or deny access to and use of ordinary community facilities" Emerson et. al. 1987
- Prevalence rates vary depending on definition, numerous studies, estimates between 6-30% (e.g. Qureshi, 1994)
- CB is a social construct - behaviour that breaks societal rules - service providers have the problem
- CB associated with severity of LD
Functions of CB
- Demand avoidance, e.g. someone starts kicking after the breakfast and this leads to positive consequences
- Self-stimulation, e.g. due to boredom
- Seeking attention
- Stress reduction
- Communication
- Biological
Causes of CB
- Learned/institutionalised, e.g. copying other peoples behaviour
- Emotion expression
Consequences of CB
- Impair health, quality of life of PWLD & others
- Abuse, exclusion, deprivation, neglect
Interventions for challenging behaviour
- Clear description of the behaviour
- Prevention
- Antecedents (triggers) & consequences (positive reinforcers)
- Change surroundings
- Differential reinforcement of behaviours
- Extinction
- Time out from positive reinforcement
- Functional communication training (if possible)
- General positive reinforcement for appropriate behaviour
- The least restrictive alternative, e.g. sedating medication
Dual Diagnosis
- Coexistence of LD & mental illness (MI) same person
- Not necessarily permanent
- Varying estimates 12-39% (e.g. Reiss 1990) due to definitions, measurements, sample selection variance
- PWLDs more valuable to developing MI
- Biological
- Psychological
- Complex diagnosis & treatment due to communication, attention span, different presentation of distress etc.
- Treatment - modification standard techniques, e.g. average length of session 25 minutes, taking drawing material to a session
Different approaches
- CBT in a modified form, e.g. helping people to understand their emotions, as most commonly emotions are labelled for people with learning disabilities
- Psychodynamic is used a lot in treating people with learning disabilities. The speaker doesn't understand why this is at it would not be her treatment of choice.
- Systemic by taking the systems into consideration, such as family friends, day care centre etc.
- Person centred planning
Answers to questions about Dr Abigael Sans work
- Dr Abigael San works with on a ward with adult men and women. The aim is to treat the patients for about 3 month and then move them on. However it is sometimes difficult to find placement for them somewhere else.
- The Mental Capacity act is used to assess whether patients can make their own decisions. The TV programme called "Richard is my boyfriend" was recommended, as it illustrates very well difficulties for people with learning difficulties when it comes to relationship and consent.
- Group work is done on the ward, e.g. anger management, women group, sexual awareness and emotion group. However due to cost cuts they don't always take place.
- A lot of bank staff work on the ward which sometimes makes care for patients difficult.
- There are 2 psychologists working both part-time for the unit.
- Dr Abigael San organised staff support groups and supported an assistant psychologist to do a user group and write a report about this.
- The relationship between psychiatrists and psychologists at her workplace is positive and constructive.
Answers to questions about Dr Abigael Sans doctorate studies at UCL
- Dr Abigael San told us that she got accepted to the course at her 4th application and enjoyed her doctorate very much.
- She informed us that there is quite a lot of study time especially at the beginning.
- She found that the placements were often very good. However it can become difficult if there are problems with Supervisors. Dr Abigael San recommended to really think about the following question which might be asked at the interview: "How would you deal with a difficult supervisor."
- She recommended starting assignments early as work gets a lot towards the end.
- The focus of the UCL course was on CBT and good research skills were taught. There was only limited teaching of psychodynamic.
- Dr Abigael San felt that she was looked after well by the university.
References
- American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: American Psychiatric Association.
- Emerson, Barret, S., Cummings, R., Hughes, H., McCool, C., Toogood, A. and Mansell, J. (1997). The special development team: developing services for people with severe learning disabilities and challenging behaviours. Canterbury: Institute of social and applied psychology, University of Kent at Canterbury.
- Qureshi H (1994) 'The Size of the Problem' in Severe Learning Disabilities and Challenging Behaviours, Eds Emerson E, McGill P and Mansell J, Chapman & Hall.
- Reiss, S. (1990) Prevalence of dual diagnosis in community based day programmes in the Chicago metropolitan area. American Journal of Mental Retardation, 94, 578-585.
Recommended reading
- Baum S & Lynggaard H (Eds) (2006) Intellectual Disabilities -A Systemic Approach. London: Karnac Books.
- Department of Health (2001). Valuing People: A new strategy forLearning Disability for the 21st century. London: MMSO
- Royal College of Psychiatrists (2007). Challenging Behaviour: A unified approach- Clinical and service guidelines for supporting people with learning disabilities who are at risk of receiving abusive or restrictive practices.28.08.07 http://www.rcpsych.ac.uk/publications/collegereports/cr/cr144.aspx
- Sinason, V. (1992). Mental Handicap and the Human Condition: New Approaches from the Tavistock. London: Free Association Books.
- Stenfert-Kroese, B., Dagnan, D. and Loumidis, K. (1997). Cognitive-behaviour therapy for people with learning disabilities. London: Routledge.
The group thanked Dr Abigael San for her talk and answering our questions.
The next group will meet on 18th September 2007, we hope to see you there!